[Anna Jones]

Keen to hear what the general consensus is regards PPPD and whether most therapists would refer on to a vestibular specialist?

[annie dawson]

Do the panel have any advice regarding NDIS plans and FND? In particular when FND is only 1 part of their clinical picture? How do you prove permanency when symptoms fluctuate but still cause significant disability?

[Leona Pemberton]

Hi Annie, I have the same question and I couldn’t get into the panel discussion initially. Did you get an answer, please. My clue has hyper mobility syndrome and FND

[Megan Thorburn]

Keen for recommendations for a client with dense unilateral upper limb weakness (Still awaiting neurology confirmation of diagnosis but lost of positive signs on assessment). Working on weight-bearing positions but limited by significant pain in shoulder/neck. Any other recommendations of things to try from the panel?

[Leanna clarke]

Any ideas for people who experience whole body tremors when they are trying to sleep at night?

[Claire McInnes]

Eager to hear about the key areas of FND pathophysiology to revise

[Olivia Talbot]

Keen to hear ideas for distraction for FND clients who are wheelchair bound due to LL paralysis. Any useful ideas or equipment tools?

[Olivia Talbot]

Also interested, have the panelists found that FND clients need to have a baseline acceptance of their diagnosis in order to see improvements in therapy?

[Alice Bond]

Do you find certain types of symptoms (e.g. functional weakness, gait disturbance, dizziness, cognition, pain, NES etc) respond better/faster to intervention -If so why do you think this is (Something about the rehabilitation technique, the part of the nervous system involved ability for patient to see measurable progress or something else)?

[Abbie Grace]

Anyone have evidence for neurofeedback/biofeedback helping?

[Abbie Grace]

Also, 95% of the time its left side weakness, paralysis etc, but its flipped to right side 2-3 times for 2-3 days in the last 3 years. What does that mean for the perception that it’s a specific part of the brain involved?

[Abbie Grace]

Finally, a fight with work cover for neurophysio to continue in the community, after an FND clinic program temporarily took over from the last neurophysio, has been fruitless after 12 months. That is, work cover approved specialist care, but at normal rates, leaving a $150to180/week gap fee. A determined and brilliant team of orthopedic physios are trying to fill that gap, but it leaves no time to treat painful physical injuries from FND symptoms. What can practitioners do to advocate en masse for FND patients trapped in a work cover system that doesn’t account for neuro training meaning (deserved) higher treatment fees?

[Frances Marron]

Does anyone have a process or policy for seeing people with FND in a hospital gym setting where the only medical help is to call the crash team/emergency response team? Do you have two people present for safety or do you wait out the attack? E.g. if it is difficult to tell if it is an epileptic or non-epileptic attack.

If you wait does it depend on if you are familiar with the person’s attacks or would you wait the first time it happens too? Thank you!